On Monday, I had my NT (nuchal translucency) scan. The test results will indicate the chances of Down Syndrome and a host of other chromosomal abnormalities. Last week my doctor was optimistic: I might have an excellent score and we could forgo further screening. Or it could be in the middle and we might opt to wait for the amnio. Or it could be not great and she’d recommend a CVS, the earlier, slightly riskier procedure.
The test itself is simple and non-invasive. In fact, it was kind of fun. The technician was a friendly, Eastern European woman who obviously enjoyed her job. She needed to get a clear shot of the neck away from the uterine wall (or whatever it was pressed against). The little guy was sleeping. She pointed out the encouraging, strong heartbeat. Good sign. The size of the fetus had doubled since the last screening less than two weeks ago. “I need him to wake up,” she said. “I need him to turn over.” She pressed her paddle into my abdomen and shook it around. I felt a little bad about waking him up from his nap, but we needed to get down to work. “There he goes,” she says, and points out the feet and arms (two of each!) kicking and punching back and forth. I wasn’t prepared for that. Legs? Kicking? In quick paddle like motions. Kick, kick, kick. Pause. Kick, kick, kick. And the little arms and fists scrambling in the air (or fluid). It was a Disney moment. Aw, isn’t that adorable! How wonderful. How amazing!
Then she switched views and showed me the 3D version. This I was not prepared for. This I had not seen in my “What to Expect” book, nor the books Dr. L gave me last week. “What’s that?” I asked, watching this tiny birdlike creature stretch and claw under a sheath of tightly pulled skin. “What the heck is that?” She explained it was a 3D view and more like what the fetus actually looked like. I felt a little sick. I wasn’t prepared to see the un-Disney version. It was real, it was fascinating, but it was a little too much for me. Later, I walked most of the way home, despite the 95-degree heat wave. I stumbled along Broadway in my flip-flops, soaking up the Dominican ambiance, watching all the people who started out as blobs of flesh and bone.
Later, R. said, what did you think? That they start out fully formed? No, of course not. I guess I hadn’t really thought of it. The technician presented me with a handful of snapshots from the session. Two of 3-D view and the rest from the regular ultrasound. One of the latter was particularly clear and showed a shapely little skull with rounded forehead and button nose. I placed that one on the top of the stack and posted it on the refrigerator.
For the next day or two I kept talking about how disturbed I was by the 3-D image. R. scolded me, telling me to stop obsessing about it. I told friends how detached I felt from the pregnancy, how seeing that image had made it more real but more unsettling. I’d lie in bed and think about the creature growing, quickly now, and that half formed face, that alien head without every feature in place. It will grow, R. assured me. And maybe that is what I found most disturbing about the image. That it wasn’t fully formed. That I’d seen it in a state of growth, unfinished, and I fear that that is how it will remain. But I was thrilled to see two arms, two legs. Even fingers and toes.
Yesterday a work, while interviewing a very nice programmer from India, my doctor called me on my cell phone. I knew if I didn’t answer it would be another day or so before we connected. I left the poor guy in the conference room for fifteen minutes while I roamed the halls trying to find a hot spot where my phone worked. Dr. L. assured me that the bleeding I’d experienced the night before was probably nothing to worry about since I’d had a good scan on Monday and she wanted to talk to me about my NT scan. At 3:30am, I’d woken up terrified to see what looked like a heavy menstrual flow. How could she be sure nothing was wrong.? She went on to tell me that my NT results were in line with my age. Basically, we didn’t get the reassurance we wanted. When she told me my range from the test and the range from my age, I quickly calculated that my test, in fact, scored lower. I looked back in the glass enclosed conference room and watched the interviewee click away on his PDA, glad that he had a distraction. Standing in a sea of empty cubicles, I remembered that someone was having a going away party in the larger conference room. I could talk about the risk of Down Syndrome openly, without walls or glass enclosures.
Dr. L. was recommending the CVS and for next week. Rattling off numbers and risks, she assured me the procedure was safe and that their facility was top-notch. I knew I would do it, but said, I have to discuss with my husband. Of course, she said, probably knowing that my decision had been made. I didn’t cry on the phone with her. How could I? I had to get back to my interview. She suggested R. and I meet with a genetic counselor the next day (today) that, she said, would make us feel better about the risks of the procedure. Sure, I said. Of course, more information.
When I went back to the interview, our time was up. I apologized profusely, and wondered if he could read the notes I had scribbled on his resume, the only piece of paper I took with me when I left: CVS, 1/38, 1/ 35, genetic counselor.
I told R. he had to come to the appointment with me on Friday, and that he had to come to the CVS. I’m through doing this alone, I said. I refuse to go to one more appointment by myself and swallow my heart as I watch the ultrasound monitor search for the heartbeat, and hold my breath until I see that fluttering heartbeat pulse on the screen. I realized the last time he’d come to appointment with me was the retrieval, and he had to be there for that. I was feeling very alone.
Talk it one day at a time, he reassures me. And I think, easy for you to say. You aren’t living, breathing, thinking this pregnancy every second of the day. You aren’t the one being prodded and poked, waking up in blood soaked underwear, reading books and searching online for risk factors and what every gurgle and strum of your body means.
Last night I went for a walk in Riverside Park. With the break in heat, the park was busy with dog walkers and joggers and kids coming home from softball games. My irritation with R. for not being there festered. But I realized as I walked along that I wasn’t alone. That I’d been feeling this way, accompanied?, for some weeks now. It’s a strange comfort to know that I’m not alone. And maybe I wouldn’t have felt this way if I hadn’t seen that disturbing image of protoplasm and bones. However unformed, it’s hear with me, every step of my day. Which makes the thought of something being wrong sadder than I can put into words.